Newsletter October 2023

October Newsletter

Newsletter October:

Dear friends of the ICU diary
We hope that you are all doing well! As usual, we have summarized some studies about ICU diaries for you and report some other interesting papers, too!
Enjoy reading!
Teresa, Kristin, and Peter

As technology -and people- are emerging, more and more electronically diaries are being developed, including web-based diaries. Anne-Sophie Debue, PhD from France, is performing an interesting project. LifeMapp Diary is a free, safe, web based ICU diary platform, developed with and for ICU professionals, patients and relatives. It’s a great tool to facilitate involvement, save time, but also to do research! It has been developed in French and they will have an English version by the end of 2023 but they are happy to spread it around the world if they find people to translate the app :)
Link to the
website  Questions to Anne-Sophie
Anne-Sophie, congratulations to this wonderful project!
PS: yes, we are in touch with Anne-Sophie to translate it into German!


Impact of ICU diaries on patients and families
More and more patients are surviving their stay in intensive care units. However, many of these survivors face problems like physical issues and changes in their mental health, summarized as "Post-Intensive Care Syndrome" or PICS. Among the things that can cause PICS, memory problems seem to be a big factor. Bosco et al. (2023) from Italy want to research the impact of ICU diaries on patients’ and families’ wellbeing and long-term outcome in a mixed method study, including quantitative and qualitative data. The authors want to explore how keeping a diary during an intensive care unit stay affects the mental health of patients and their family members after they leave the ICU by performing an observational trial with follow-up. Especially memories, anxiety, depression, PTSD, and quality of life should be evaluated at 0, 3, and 12 months after discharge from ICU. Furthermore, the diaries should be analyzed. The results of this study will show if keeping a diary in the ICU improves the quality of life for persons who've been in the ICU and their family members. We will keep our fingers crossed for this trial!
Bosco V, Froio A, Mercuri C, Sansone V, Garofalo E, Bruni A, Guillari A, Bruno D, Talarico M, Mastrangelo H, Longhini F, Doldo P, Simeone S.
The Impact of an Intensive Care Diary on the Psychological Well-Being of Patients and Their Family Members: Longitudinal Study Protocol. Healthcare (Basel). 2023 Sep 19;11(18):2583

Diaries for patients after cardiac arrest
A lot of patients with cardiac arrest and their families experience severe fear-based distress, which has an impact on patients’ outcome. Hence, diaries might reduce this distress and may improve outcome. Cornelius et al (2023) from the US performed a randomized pilot study to test the feasibility of family authored ICU diaries vs usual care. In total, 16 patients were included and randomized. The intervention was well received and feasible. Distress was lower in the intervention group, albeit non-significant. More research is needed to confirm the results.
Cornelius T, Mendieta M, Cumella RM, Lopez Veneros D, Tincher IM, Agarwal S, Kronish I.
Family-authored ICU diaries to reduce fear in patients experiencing a cardiac arrest (FAID fear): A pilot randomized controlled trial. PLoS One. 2023 Jul 27;18(7):e0288436.

Write to heal. Adopting the Patient Diary in the ICU: An experience 
(this part is edited by Alessandra De Luca, Giulia Mascagni from Italy. Thank you Alessandra and Giulia!) This research focuses beyond the doors of an open ICU: a hospital ward with a high degree of complexity and organizational innovation in which the most recent events in the health emergency from COVID-19 pose new difficulties and unprecedented challenges. First of all, the scope of application of the Patient Diary tool is defined starting from the reference literature up to its introduction in the Neuro Reanimation department of the AOUC, Florence (Italy). The Di.Te. project's main numbers and the qualitative study's main themes are presented. Finally, a summary reflection on the patient's diary is proposed as a channel for dialogue between all the interacting actors in the ward and as a tool for co-constructing the treatment path.
Warm greetings from Florence by Alessandra De Luca and Giulia Mascagni
Alessandra De Luca, Giulia Mascagni,
Scrivere per curare. Un’esperienza di adozione del Diario del Paziente in Terapia Intensiva in "SALUTE E SOCIETÀ" 1/2023, pp 168-182, DOI: 10.3280/SES2023-001012

Care and Caring. (Poster). Times and Tools of Connection in the Critical Care Area. The Diary. By Di Ruscio C., Bigiarini B., De Luca A., Bucciardini L., Meucci B. (2023)

Peer support group: in a qualitative interview study, experts-by-experience joining a peer support group evaluated the group as a) supporting the difficult recovery journey, b) relationships and shared experiences, c) value of professional facilitation, and d) practical consideration. Service evaluation by Clarke (2023) from the UK
Interventions for family-centered care: in a systematic review, 52 RCTs of low risk of bias could be identified for improving family centered care, mostly about communication and information, and receiving care and meeting family needs, with 67% of studies improved at least 1 family-centered outcome. Wang et al (2023)
Risk for PICS-F: in 164 ICU patients and their families, unemployment was identified as significant risk factor for anxiety and depression. No association was found between patient’s characteristics and emotional stress in families. Observational study b Lobato et al (2023) from Portugal
Risk for PICS-F II: in a systematic review including 51 studies and 9,302 relatives, 51 different risk factors were identified, including patient-, relative- and medical staff related factors. Many are modifiable. Systematic review by Putowski et al (2023)
PICS-Update: a recent review updated the knowledge about PICS by discussion of co-occurrence of specific impairments, subtypes/phenotypes, risk factors/mechanisms, interventions, and adding new aspects of PICS, including long-term fatigue, pain, and unemployment. Hiser et al (2023)
Models of follow-up: in a systematic review including 74 studies with moderate risk of biasand 5,998 patients, identified different models of follow-up, such as in-person hospital-based interventions including hybrid interventions, tele health and diaries. Participation was higher without hospital attendance. Dimopoulos et al. (2023)
Pain: in 814 patients with a stay on ICU for median 6 days, the median pain intensity was 2 after three months (NRS 0-10, 10=max.), the half had significant pain (NRS ≥3), and one third NRS ≥4, but only one third had specialized pain management. Bourdiol et al. (2023) from France
Financial burden: in an analysis of 2,032 caregivers of 1,183 children, who have been treated on pediatric ICUs, post-PICU caregivers had a higher odds of having any delinquent debt or having a low credit score. Cohort study by Carlton et al (2023) from the US
Clinical Psychology: Psychologists are rare in ICU. Psychologists are needed for the care of acute patients and families, aftercare, for the wellbeing of the staff, and much more. Beadman and Carretto (2023) from UK
Memory making for supporting bereaved families in the ICU: a synthesis including 7 qualitative papers identified 4 main themes: connection, compassion, engagement and creation of memories as well as continuation (bonds to the loved one). Systematic Synthesis by MacEachen et al (2023) from the UK

Missing a study?
We can't read and summarize every study. If we missed an important study, please email us a brief summary and reference, and we'll be happy to include it in the newsletter!

Stay heathy and best wishes!
Teresa, Kristin & Peter

Dr. Teresa Deffner, Dipl.-Rehapsych. (FH), Psychologist in Intensive Care Medicine, University Hospital Jena, Germany
Kristin Gabriel, Media economist, art historian, and yoga teacher, Berlin
Dr. Peter Nydahl, RN BScN MScN, Nursing Research, University Hospital of Schleswig-Holstein, Germany

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